Raleigh Mom Pushes 'Sam's Law' to Make Seizure Education Mandatory in NC Schools

A mom is fighting for parents' rights to have "seizure plans" in North Carolina schools


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Image courtesy of Hafakot/Shutterstock.com

May 4, 2016, was the day that changed our lives forever. Zachary was 11 and on his way to the Outer Banks for an overnight field trip to mark the end of fifth grade and the move to middle school. At about 10:30 a.m., I got a call at work that he had had a tonic-clonic seizure.

“A seizure, what is that?” I asked the chaperone and the paramedics that were on scene. Zachary was able to talk to me and seemed okay but we decided to have him seen at the hospital.

My husband and I rushed from work and made the three-hour journey. When we got there he was talking and seemed fine. At this point, the doctor told us that it is not uncommon for a person to have a seizure and that it isn’t really a seizure disorder, or epilepsy, until a person has more than one seizure. We took this information and planned to set up an appointment with a neurologist just to check on Zach. We made our journey home and Zach was so disappointed that he was going to miss the field trip. As we all would learn, this was just the beginning.

The next few months introduced us into the world of epilepsy. There were neurologist appointments, medications, research, EEG’s, blood tests. We tried to learn as much as we could as quickly as we could. All the while, Zach kept having seizures. Some were shorter, some were longer, some were at night, some were during the day. We continued to try to work on the combination of the medications and talk to as many people as we could about his case.

As the months went on, the seizures changed. They then became drop seizures where he would just fall. He had so many bruises, cuts and scrapes that he looked like he had been beat up regularly. We had to make him start wearing a helmet to make sure he didn’t sustain a head injury but the emotional toll at a time where appearance is important was difficult. He was so strong but it was tough on him.

And, he was having trouble in school because his seizures were happening so often. He would miss days of school at a time or if he was there would be in such a fog because of the medications. And, we couldn’t let him do any activities or fun things because we were so afraid he would have a seizure.

He had many seizures in school which interrupted learning for everyone. However, we were fortunate that his school is small, the staff was trained and his classmates looked out for him. When he would have a seizure, one of the boys would get a staff member, some would stay with him until the staff member came in and the others would file out quickly. It happened so often at this point, everyone was used to it.

We have had to face the many challenges associated with this condition that included a near drowning when Zach had a seizure in a pond, but we're happy to report that Zach has been seizure-free since October 2018. We are constantly worried they will come back but we are thankful to be able to engage in life again. We are in a place now where we can reflect on all that has happened, be thankful for where we are and use our story to help others so maybe they won’t have the struggles that we have had.

We feel passionate that every school should be prepared like ours to assist a child with seizures. Epilepsy is such a terrible disease and ensuring the safety and comfort for these kids is essential. Not every school has the resources to make sure all students who have had or could have a seizure are safe at school. That's where Sam's Law comes in. Sam's Law was first introduced in eastern Texas. It's named after Samantha Watkins, who died in 2016 after experiencing an epileptic seizure. With Sam's Law, every parent who has a student with epilepsy would be able to petition to have a "seizure action plan" in place. Schools would have critical information on-hand like a student's seizure medication information, dosage and method of administering. If signed into law in North Carolina, it would go into effect the 2021 school year.

In July of this year, Sam's Law passed the House (HB955) and was sent to the Senate for concurrence (SB354). The concurrence failed so it has been sent to a committee. We have been asked to keep pushing our legislators to come to an agreement. This law will help the 15,500 children in North Carolina that have epilepsy go to school safely. It will require schools to train about seizures, have first aid for seizures and have a seizure action plan.  My son is lucky that his school has all of this available but we know others that do not.

 

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Sponsor: JC Raulston Arboretum
Telephone: (919) 513-7011
Contact Name: Elizabeth Overcash
Website »

More information

Kindermusik is a research-based early childhood curriculum that includes 45-minute classroom lessons with materials and resources that encourages parental involvement . Research has linked...

Cost: $70/month

Where:
Hope Community Building
2080 E Williams St
Hope Community Building, Fuquay Varina Room
Apex/Holly Springs, NC  27539
View map »


Telephone: 191-990-25432
Contact Name: Leigh Hamm
Website »

More information

Sign up for a Raleigh scavenger hunt and put on your best Nick Cage impression as you seek out the national treasures hidden in Raleigh. Via an app, be guided through the cultural, historical,...

Cost: See website for fees

Where:
Downtown Raleigh
500 S. Salisbury St.
Raleigh, NC  27601
View map »


Sponsor: LetsRoam!
Telephone: 833-202-7626
Contact Name: LetsRoam!
Website »

More information

I am a mom and retired CPA who is passionate about teaching teens about the high cost of their choices. I teach a fun, interactive "Game of Life meets Dave Ramsey" class that has teens experience...

Cost: $225

Where:
Hope Community Church- Apex
2080 E Williams Street
Apex, NC  27539
View map »


Sponsor: Beyond Personal Finance
Contact Name: Charla McKinley
Website »

More information

Short class advertising for local class   I am a mom and retired CPA who is passionate about teaching teens about the high cost of their choices. I teach a fun, interactive "Game of Life meets...

Cost: $225

Where:
Hope Community Church- Apex
2080 E Williams Street
Apex, NC  27539
View map »


Sponsor: Beyond Personal Finance
Contact Name: Charla McKinley
Website »

More information

Short class advertising for local class   I am a mom and retired CPA who is passionate about teaching teens about the high cost of their choices. I teach a fun, interactive "Game of Life meets...

Cost: $225

Where:
Hope Community Church- Apex
2080 E Williams Street
Apex, NC  27539
View map »


Sponsor: Beyond Personal Finance
Contact Name: Charla McKinley
Website »

More information

We invite all Triangle youth between the ages of 8 thru 17 with a sincere interest in the Performance Art of Magic to join Magic Youth Raleigh! This youth program teaches magic history and theory,...

Cost: $35 per Student

Where:
New Horizons Fellowship
820 E. Williams St.
Apex, NC  27502
View map »


Sponsor: The International Brotherhood of Magicians
Contact Name: Roger Way
Website »

More information

Young children and their families are invited to participate in an interactive program with books, songs, movement, and other early literacy-based activities, carefully selected to engage an...

Cost: Free

Where:
Cameron Village Regional Library
1930 Clark Avenue
Raleigh, NC  27605
View map »


Sponsor: Wake County Public Libraries

More information

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The Engage Art Contest is a juried competition for original Visual Art, Music Video, Film and Performing Arts. The topic is the Spiritual Battle described in Ephesians 6:10-20 and related...

Cost: Free

Where:
Online
PO Box 78951
Charlotte, NC  28271
View map »


Sponsor: Engage Art Contest
Telephone: 980-999-1447
Contact Name: Ranika Chaney
Website »

More information

Forget tourist-filled museums, make your own memories with a photo scavenger hunt tour in Raleigh! On a Let’s Roam scavenger hunt, you and your team will work together to wander throughout...

Cost: $11

Where:
500 S Salisbury St
raleigh, NC  27601
View map »


Sponsor: Let's Roam
Website »

More information

Summer Garden Camps at the JCRA invite your child to investigate nature during half or full day camps.  Campers tend to the garden, harvest vegetables, catch insects, and create crafts from the...

Cost: Varies depending on week of camp

Where:
JC Raulston Arboretum
4415 Beryl Rd
Raleigh, NC  27606
View map »


Sponsor: JC Raulston Arboretum
Telephone: (919) 513-7011
Contact Name: Elizabeth Overcash
Website »

More information

Summer Garden Camps at the JCRA invite your child to investigate nature during half or full day camps.  Campers tend to the garden, harvest vegetables, catch insects, and create crafts from the...

Cost: Varies depending on camp week

Where:
JC Raulston Arboretum
4415 Beryl Rd
Raleigh, NC  27606
View map »


Sponsor: JC Raulston Arboretum
Telephone: (919) 513-7011
Contact Name: Elizabeth Overcash
Website »

More information

Amongst the ancient oak trees is the heart of Raleigh. We'll help you see the forest for the trees and all its magic splendor. Tourist, local, or new to town, this is a lively small group activity...

Cost: $11

Where:
Downtown
500 S Salisbury St
Raleigh, NC  27601
View map »


Sponsor: Let's Roam
Telephone: 833-202-7626
Contact Name: Kelly
Website »

More information

Kindermusik is a research-based early childhood curriculum that includes 45-minute classroom lessons with materials and resources that encourages parental involvement . Research has linked...

Cost: $70/month

Where:
Hope Community Building
2080 E Williams St
Hope Community Building, Fuquay Varina Room
Apex/Holly Springs, NC  27539
View map »


Telephone: 191-990-25432
Contact Name: Leigh Hamm
Website »

More information

The Community Farm at Chestnut Ridge + Growga are excited to offer outdoor yoga classes this spring!   The Little Sprouts Growga program is for ages 2-5. They learn basic mindfulness elements...

Cost: $150

Where:
The Community Farm at Chestnut Ridge
2902 Mt. Willing Road
Efland, NC  27243
View map »


Sponsor: The Community Farm at Chestnut Ridge
Telephone: 919-304-2178
Contact Name: Erica Romkema
Website »

More information

Sign up for a Raleigh scavenger hunt and put on your best Nick Cage impression as you seek out the national treasures hidden in Raleigh. Via an app, be guided through the cultural, historical,...

Cost: See website for fees

Where:
Downtown Raleigh
500 S. Salisbury St.
Raleigh, NC  27601
View map »


Sponsor: LetsRoam!
Telephone: 833-202-7626
Contact Name: LetsRoam!
Website »

More information

We invite all Triangle youth between the ages of 8 thru 17 with a sincere interest in the Performance Art of Magic to join Magic Youth Raleigh! This youth program teaches magic history and theory,...

Cost: $35 per Student

Where:
New Horizons Fellowship
820 E. Williams St.
Apex, NC  27502
View map »


Sponsor: The International Brotherhood of Magicians
Contact Name: Roger Way
Website »

More information

Young children and their families are invited to participate in an interactive program with books, songs, movement, and other early literacy-based activities, carefully selected to engage an...

Cost: Free

Where:
Cameron Village Regional Library
1930 Clark Avenue
Raleigh, NC  27605
View map »


Sponsor: Wake County Public Libraries

More information

The park comes alive after dark! Let the moon guide your way as we stroll around the pond in search of these night-time critters. Play fun games and try to catch some nocturnal bugs! Don't forget a...

Cost: FREE. Registration required for everyone; children must have adult accompaniment

Where:
Crowder County Park
4709 Ten-Ten Rd
Apex, NC  27529
View map »


Telephone: 919-662-2850
Website »

More information

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The Engage Art Contest is a juried competition for original Visual Art, Music Video, Film and Performing Arts. The topic is the Spiritual Battle described in Ephesians 6:10-20 and related...

Cost: Free

Where:
Online
PO Box 78951
Charlotte, NC  28271
View map »


Sponsor: Engage Art Contest
Telephone: 980-999-1447
Contact Name: Ranika Chaney
Website »

More information

Forget tourist-filled museums, make your own memories with a photo scavenger hunt tour in Raleigh! On a Let’s Roam scavenger hunt, you and your team will work together to wander throughout...

Cost: $11

Where:
500 S Salisbury St
raleigh, NC  27601
View map »


Sponsor: Let's Roam
Website »

More information

  Meet at the Waterwise Garden (first parking lot on right) Join our bird enthusiast, Vernon, for an easy walk while looking and listening for our feathered friends. Discover...

Cost: FREE

Where:
Lake Crabtree County Park
1400 Aviation Pkwy.
Morrisville, NC  27560
View map »


Sponsor: Lake Crabtree County Park
Telephone: 919-460-3355
Contact Name: Carol Cunningham
Website »

More information

Summer Garden Camps at the JCRA invite your child to investigate nature during half or full day camps.  Campers tend to the garden, harvest vegetables, catch insects, and create crafts from the...

Cost: Varies depending on week of camp

Where:
JC Raulston Arboretum
4415 Beryl Rd
Raleigh, NC  27606
View map »


Sponsor: JC Raulston Arboretum
Telephone: (919) 513-7011
Contact Name: Elizabeth Overcash
Website »

More information

Summer Garden Camps at the JCRA invite your child to investigate nature during half or full day camps.  Campers tend to the garden, harvest vegetables, catch insects, and create crafts from the...

Cost: Varies depending on camp week

Where:
JC Raulston Arboretum
4415 Beryl Rd
Raleigh, NC  27606
View map »


Sponsor: JC Raulston Arboretum
Telephone: (919) 513-7011
Contact Name: Elizabeth Overcash
Website »

More information

PARENTS JOIN OUR DHHS APPROVEDCPR/AED & First Aid Certification ClassesFoster parents are required to be CPR & First Aid certified. Parents, bring your child to class with you. Children 10 years...

Cost: 50-80

Where:
Holly Springs, NC
1001 Silverstone Way
Holly Springs, NC  27540
View map »


Sponsor: Save A Life Now Training Center LLC
Telephone: 919-215-6942
Contact Name: Valentina Cordoba
Website »

More information

Amongst the ancient oak trees is the heart of Raleigh. We'll help you see the forest for the trees and all its magic splendor. Tourist, local, or new to town, this is a lively small group activity...

Cost: $11

Where:
Downtown
500 S Salisbury St
Raleigh, NC  27601
View map »


Sponsor: Let's Roam
Telephone: 833-202-7626
Contact Name: Kelly
Website »

More information

PARENTS JOIN OUR DHHS APPROVEDCPR/AED & First Aid Certification ClassesFoster parents are required to be CPR & First Aid certified. Must register in advance. Space is limited. Parents, bring your...

Cost: 50-80

Where:
Holly Springs, NC
1001 Silverstone Way
Holly Springs, NC  27540
View map »


Sponsor: Save A Life Now Training Center LLC
Telephone: 919-215-6942
Contact Name: Valentina Cordoba
Website »

More information

Enjoy a wonderful springtime Brunch with the Bunny and photo op on Saturday, April 4, 2020 at Patterson Farm Market & Tours. Our Brunch with the Bunny is always a popular event! Tickets must be...

Cost: Ages 2 – 6: $10.00 includes tax Ages 6 – 12: $12.00 includes tax Ages: 13 – 54

Where:
Patterson Farm Inc. Market and Tours
10390 Caldwell Road
Mount Ulla, NC  28125
View map »


Sponsor: Patterson Farm Inc. Market and Tours
Telephone: 704-636-4005
Contact Name: Megan Hedrick
Website »

More information

Opportunities to explore all 4 levels of the mill don’t happen often! Learn the history of milling in North Carolina, test your mill trivia, and discover what interesting machinery is preserved...

Cost: $10/Adult; $8/Senior (ages 60+); $6/Child (ages 10-16);Registration is required

Where:
Historic Yates Mill County Park
4620 Lake Wheeler Road
Raleigh, NC  27603
View map »


Telephone: 919-856-6675
Website »

More information

Beavers are such busy creatures and have many unique features that allow them to survive in their aquatic world. Learn about their special adaptations through our "Build a Beaver" program then walk...

Cost: Free

Where:
Harris Lake County Park
2112 County Park Dr.
New Hill, NC  27562
View map »


Sponsor: Harris Lake County Park
Telephone: 919-387-4342
Contact Name: Joanne St. Clair
Website »

More information

Join us for an egg-cellent time on the farm Saturday, April 4 & 11,  2020 from 10 a.m. – 5 p.m. Explore the farm while you hunt for eggs and enjoy spring farm fun activities. Search for 12...

Cost: $10.00 for Hunters $7.00 for Non-Egg Hunters $6.00 for Non-Egg Hunters Senior (A

Where:
Patterson Farm Inc. Market and Tours
10390 Caldwell Road
Mount Ulla, NC  28125
View map »


Sponsor: Patterson Farm Inc. Market and Tours
Telephone: 704-636-4005
Contact Name: Megan Hedrick
Website »

More information

Kindermusik is a research-based early childhood curriculum that includes 45-minute classroom lessons with materials and resources that encourages parental involvement . Research has linked...

Cost: $70/month

Where:
Hope Community Building
2080 E Williams St
Hope Community Building, Fuquay Varina Room
Apex/Holly Springs, NC  27539
View map »


Telephone: 191-990-25432
Contact Name: Leigh Hamm
Website »

More information

The Town of Holly Spring's annual spring event, Spring Fling, is taking on a new location that has a nice ring to it. This year’s Spring Fling at Ting! will take place on Saturday, April 4 from...

Cost: FREE

Where:
Ting Park Baseball Stadium
1151 N. Main St.
Holly Springs, NC  27540
View map »


Sponsor: Town of Holly Springs
Contact Name: Rachel Downey

More information

Many wildflowers bloom in spring.  Join us for a leisurely hike through our fields and woods as we learn to recognize some blooming beauties and appreciate their stories. Age: 5yrs. and up;...

Cost: $2

Where:
Annie Louis Wilkerson. MD Nature Preserve Park
5229 Awls Haven Dr
Raleigh, NC  27614
View map »


Telephone: 919-996-6764
Contact Name: Bryan England
Website »

More information

Sign up for a Raleigh scavenger hunt and put on your best Nick Cage impression as you seek out the national treasures hidden in Raleigh. Via an app, be guided through the cultural, historical,...

Cost: See website for fees

Where:
Downtown Raleigh
500 S. Salisbury St.
Raleigh, NC  27601
View map »


Sponsor: LetsRoam!
Telephone: 833-202-7626
Contact Name: LetsRoam!
Website »

More information

Want to get inside Historic Yates Mill? Join us for a half-hour tour (starting at 1, 1:30, 2, 2:30 or 3 p.m.) to view the main power drive and milling machinery while exploring the mill's history...

Cost: $5/Adult, $4/Senior (60+ yrs), $3/Child (7-16yrs), Free/Child (6yrs & younger)

Where:
Historic Yates Mill County Park
4620 Lake Wheeler Road
Raleigh, NC  27603
View map »


Telephone: 919-856-6675
Website »

More information

Bring the whole family for this fun interactive Growga family class. Siblings and parents come together for a fun Growga hour, combining elements of our Little Sprouts and Growga Kids programs...

Cost: $150

Where:
The Community Farm at Chestnut Ridge
2902 Mt. Willing Road
Efland, NC  27243
View map »


Sponsor: Chestnut Ridge Camp & Retreat Center
Telephone: 919-304-2178
Contact Name: Erica Romkema
Website »

More information

We invite all Triangle youth between the ages of 8 thru 17 with a sincere interest in the Performance Art of Magic to join Magic Youth Raleigh! This youth program teaches magic history and theory,...

Cost: $35 per Student

Where:
New Horizons Fellowship
820 E. Williams St.
Apex, NC  27502
View map »


Sponsor: The International Brotherhood of Magicians
Contact Name: Roger Way
Website »

More information

Young children and their families are invited to participate in an interactive program with books, songs, movement, and other early literacy-based activities, carefully selected to engage an...

Cost: Free

Where:
Cameron Village Regional Library
1930 Clark Avenue
Raleigh, NC  27605
View map »


Sponsor: Wake County Public Libraries

More information

Garner Sports League Opening Day Ceremony will be held at South Garner Park at 9am on Saturday April 4, 2020.  Come join us as we kick off the Spring season for recreational baseball, fast-pitch...

Cost: 0.00

Where:
South Garner Park
1210 Poole Drive
Garner, NC  27529
View map »

More information

Topper the Bunny can’t wait to see you at the 5th Annual Egg-ceptional Egg Hunt at Hubb’s Farm in Clinton, NC, features age-appropriate egg hunts with a grand finale airplane egg drop at 3pm...

Cost: 10

Where:
Hubb's Farm
10276 US HWY 421 N
Clinton, NC  28328
View map »


Sponsor: Hubb's Farm
Telephone: 910-564-6709
Contact Name: Tammy Peterson
Website »

More information

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