Raleigh Mom Pushes 'Sam's Law' to Make Seizure Education Mandatory in NC Schools

A mom is fighting for parents' rights to have "seizure plans" in North Carolina schools


Published:

Image courtesy of Hafakot/Shutterstock.com

May 4, 2016, was the day that changed our lives forever. Zachary was 11 and on his way to the Outer Banks for an overnight field trip to mark the end of fifth grade and the move to middle school. At about 10:30 a.m., I got a call at work that he had had a tonic-clonic seizure.

“A seizure, what is that?” I asked the chaperone and the paramedics that were on scene. Zachary was able to talk to me and seemed okay but we decided to have him seen at the hospital.

My husband and I rushed from work and made the three-hour journey. When we got there he was talking and seemed fine. At this point, the doctor told us that it is not uncommon for a person to have a seizure and that it isn’t really a seizure disorder, or epilepsy, until a person has more than one seizure. We took this information and planned to set up an appointment with a neurologist just to check on Zach. We made our journey home and Zach was so disappointed that he was going to miss the field trip. As we all would learn, this was just the beginning.

The next few months introduced us into the world of epilepsy. There were neurologist appointments, medications, research, EEG’s, blood tests. We tried to learn as much as we could as quickly as we could. All the while, Zach kept having seizures. Some were shorter, some were longer, some were at night, some were during the day. We continued to try to work on the combination of the medications and talk to as many people as we could about his case.

As the months went on, the seizures changed. They then became drop seizures where he would just fall. He had so many bruises, cuts and scrapes that he looked like he had been beat up regularly. We had to make him start wearing a helmet to make sure he didn’t sustain a head injury but the emotional toll at a time where appearance is important was difficult. He was so strong but it was tough on him.

And, he was having trouble in school because his seizures were happening so often. He would miss days of school at a time or if he was there would be in such a fog because of the medications. And, we couldn’t let him do any activities or fun things because we were so afraid he would have a seizure.

He had many seizures in school which interrupted learning for everyone. However, we were fortunate that his school is small, the staff was trained and his classmates looked out for him. When he would have a seizure, one of the boys would get a staff member, some would stay with him until the staff member came in and the others would file out quickly. It happened so often at this point, everyone was used to it.

We have had to face the many challenges associated with this condition that included a near drowning when Zach had a seizure in a pond, but we're happy to report that Zach has been seizure-free since October 2018. We are constantly worried they will come back but we are thankful to be able to engage in life again. We are in a place now where we can reflect on all that has happened, be thankful for where we are and use our story to help others so maybe they won’t have the struggles that we have had.

We feel passionate that every school should be prepared like ours to assist a child with seizures. Epilepsy is such a terrible disease and ensuring the safety and comfort for these kids is essential. Not every school has the resources to make sure all students who have had or could have a seizure are safe at school. That's where Sam's Law comes in. Sam's Law was first introduced in eastern Texas. It's named after Samantha Watkins, who died in 2016 after experiencing an epileptic seizure. With Sam's Law, every parent who has a student with epilepsy would be able to petition to have a "seizure action plan" in place. Schools would have critical information on-hand like a student's seizure medication information, dosage and method of administering. If signed into law in North Carolina, it would go into effect the 2021 school year.

In July of this year, Sam's Law passed the House (HB955) and was sent to the Senate for concurrence (SB354). The concurrence failed so it has been sent to a committee. We have been asked to keep pushing our legislators to come to an agreement. This law will help the 15,500 children in North Carolina that have epilepsy go to school safely. It will require schools to train about seizures, have first aid for seizures and have a seizure action plan.  My son is lucky that his school has all of this available but we know others that do not.

 

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Cost: Free

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Cost: See website for fees

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View map »


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Cost: Free

Where:
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1025 Blue Ridge Road
Raleigh, NC  27607
View map »

More information

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Cost: 0 – $10

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Raleigh, NC  27607
View map »


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Cost: $11

Where:
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500 S Salisbury St
Raleigh, NC  27601
View map »


Sponsor: Let's Roam
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Contact Name: Kelly
Website »

More information

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Cost: $70/month

Where:
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2080 E Williams St
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Apex/Holly Springs, NC  27539
View map »


Telephone: 191-990-25432
Contact Name: Leigh Hamm
Website »

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Sign up for a Raleigh scavenger hunt and put on your best Nick Cage impression as you seek out the national treasures hidden in Raleigh. Via an app, be guided through the cultural, historical,...

Cost: See website for fees

Where:
Downtown Raleigh
500 S. Salisbury St.
Raleigh, NC  27601
View map »


Sponsor: LetsRoam!
Telephone: 833-202-7626
Contact Name: LetsRoam!
Website »

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Skate on an ice trail or free skate on 17,000 sq. ft of ice. Located in the Upper Pond of the Whitewater Center, the skating environment features three distinct programming areas and an on-ice...

Cost: 20

Where:
USNWC
5000 Whitewater Center Pkwy
Charlotte, NC  28214
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Sponsor: USNWC
Telephone: 704-391-3900
Website »

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Lights is a half-mile walking trail that leads viewers through a series of immersive light installations featuring  honeycombs, vines, crystals, and other natural features integrated into the...

Cost: Free

Where:
USNWC
5000 Whitewater Center Pkwy
Charlotte, NC  28214
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Sponsor: USNWC
Telephone: 704-391-3900
Website »

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Triangle Restaurant Week (January 20-26, 2020) is a week-long celebration of culinary excellence designed to incorporate the premier Raleigh, Durham, Chapel Hill and surrounding area restaurants....

Cost: $15-$35

Where:
Participating Restaurants
, NC


Sponsor: Triangle Blvd
Telephone: 919-673-5784
Website »

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Take a hike after dark and enjoy the sights and sounds of a quiet night along the American Tobacco Trail. We will walk to the Beaver Creek bridge and back (about one mile total). Free for ages 4...

Cost: Free

Where:
American Tobacco Trail
1309 New Hill-Olive Chapel Rd.
Apex, NC  27502
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Sponsor: Harris Lake County Park and the American Tobacco Trail
Telephone: 919-387-4342
Contact Name: Joanne St. Clair
Website »

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Hounded by Death, the character of Everybody desperately seeks out everyone and everything they know in hope of finding something meaningful to take to the grave. These 90 minutes of theatrical...

Cost: Ticket prices start at $15

Where:
PlayMakers' Repertory Company
120 Country Club Rd
Chapel Hill, NC  27599
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Telephone: 919-962-7529

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Rumpelstiltskin-A Tale of Gold Book by Ellie FaggionMusic and Lyrics written by Brian Shrager and Ellie FaggionProduced by special arrangement with the author.Directed by Beth Wilson...

Cost: varies

Where:
Spiritual Twist Productions
1250 Aversboro Road
Garner, NC  27529
View map »


Sponsor: Spiritual Twist Productions
Telephone: 919-977-1976
Contact Name: Kathy MacDonald
Website »

More information

David Burney, lead singer for the acclaimed Johnny Cash tribute band Johnny Folsom 4, brings his one-man show to The ArtsCenter for three shows, January 24-26, 2020.  In “Hello, I’m...

Cost: $15 to $20

Where:
The ArtsCenter
300-G East Main St.
300-G East Main Street.
Carrboro, NC  27510
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Sponsor: The ArtsCenter
Telephone: 919-929-2787
Contact Name: Patrick Phelps-Mckeown
Website »

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Forget tourist-filled museums, make your own memories with a photo scavenger hunt tour in Raleigh! On a Let’s Roam scavenger hunt, you and your team will work together to wander throughout...

Cost: $11

Where:
500 S Salisbury St
raleigh, NC  27601
View map »


Sponsor: Let's Roam
Website »

More information

Amongst the ancient oak trees is the heart of Raleigh. We'll help you see the forest for the trees and all its magic splendor. Tourist, local, or new to town, this is a lively small group activity...

Cost: $11

Where:
Downtown
500 S Salisbury St
Raleigh, NC  27601
View map »


Sponsor: Let's Roam
Telephone: 833-202-7626
Contact Name: Kelly
Website »

More information

Join the Museum and the Raleigh Astronomy Club to help you see the big picture — of the Universe! From comet crafts to solar observing, lectures to rocket launches, space enthusiasts of all ages...

Cost: Free

Where:
NC Museum of Natural Sciences
11 W. Jones St.
Raleigh, NC  27601
View map »


Website »

More information

Join us for the Kids Exchange Spring/Summer Consignment Sale in July! This FREE ADMISSION event is the largest kids consignment sale in the nation and is held at the NC State Fairgrounds at...

Cost: 0 – $10

Where:
Jim Graham Building
1025 Blue Ridge Road
Raleigh, NC  27607
View map »


Website »

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Join us for the Kids Exchange Spring/Summer Consignment Sale in February!   This FREE ADMISSION event is the largest kids consignment sale in the nation and is held at the NC State Fairgrounds...

Cost: Free

Where:
Jim Graham Building
1025 Blue Ridge Road
Raleigh, NC  27607
View map »

More information

Family Wildlife Series: Tricky Tracks Saturday, January 25 10-11 a.m. Come dressed for the weather so you can roam the park learning the fine art of “tracking”.   Make a cast of an animal...

Cost: Free

Where:
Blue Jay Point County Park
3200 Pleasant Union Church Road
Raleigh, NC  27614
View map »


Telephone: 919-870-4330
Website »

More information

Kindermusik is a research-based early childhood curriculum that includes 45-minute classroom lessons with materials and resources that encourages parental involvement . Research has linked...

Cost: $70/month

Where:
Hope Community Building
2080 E Williams St
Hope Community Building, Fuquay Varina Room
Apex/Holly Springs, NC  27539
View map »


Telephone: 191-990-25432
Contact Name: Leigh Hamm
Website »

More information

RALEIGH (Jan. 16, 2020) – The North Carolina Association for Public Charter Schools will host its first school fair during National School Choice Week on Saturday, Jan. 25. The fair will take...

Cost: Free

Where:
Raleigh Convention Center
500 S. Salisbury Street
Raleigh, NC  27610
View map »


Sponsor: NC Association of Public Charter Schools
Telephone: 336-669-9996
Contact Name: Rhonda Dillingham
Website »

More information

Join the statewide kickoff to Black History Month at the North Carolina Museum of History in Raleigh. Named a Top 20 Event by the Southeast Tourism Society since 2015, the 19th...

Cost: 0

Where:
North Carolina Museum of History
5 East Edenton Street
Raleigh, NC
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Website »

More information

Just in time to keep up with those home improvement resolutions for 2020, the Downtown Raleigh Home Show returns to downtown’s Raleigh Convention Center January 24-26, 2020  with a jam-packed...

Cost: Tickets are $12 for adults and free for children under 12. Advance $9 tickets

Where:
Raleigh Convention Center
500 S. Salisbury St.
Raleigh, NC  27601
View map »


Sponsor: Marketplace Events
Telephone: 904-608-3823
Contact Name: Liz Morgan

More information

Sign up for a Raleigh scavenger hunt and put on your best Nick Cage impression as you seek out the national treasures hidden in Raleigh. Via an app, be guided through the cultural, historical,...

Cost: See website for fees

Where:
Downtown Raleigh
500 S. Salisbury St.
Raleigh, NC  27601
View map »


Sponsor: LetsRoam!
Telephone: 833-202-7626
Contact Name: LetsRoam!
Website »

More information

Skate on an ice trail or free skate on 17,000 sq. ft of ice. Located in the Upper Pond of the Whitewater Center, the skating environment features three distinct programming areas and an on-ice...

Cost: 20

Where:
USNWC
5000 Whitewater Center Pkwy
Charlotte, NC  28214
View map »


Sponsor: USNWC
Telephone: 704-391-3900
Website »

More information

Lights is a half-mile walking trail that leads viewers through a series of immersive light installations featuring  honeycombs, vines, crystals, and other natural features integrated into the...

Cost: Free

Where:
USNWC
5000 Whitewater Center Pkwy
Charlotte, NC  28214
View map »


Sponsor: USNWC
Telephone: 704-391-3900
Website »

More information

Spanish Alive is providing Family Spanish classes starting in January! Join us to learn Spanish as an entire family in an immersive, fun environment. Our teachers are trained Spanish educators and...

Cost: $75-$216

Where:
Spanish Alive
156 E. Chatham St
Cary, NC
View map »


Website »

More information

Rumpelstiltskin-A Tale of Gold Book by Ellie FaggionMusic and Lyrics written by Brian Shrager and Ellie FaggionProduced by special arrangement with the author.Directed by Beth Wilson...

Cost: varies

Where:
Spiritual Twist Productions
1250 Aversboro Road
Garner, NC  27529
View map »


Sponsor: Spiritual Twist Productions
Telephone: 919-977-1976
Contact Name: Kathy MacDonald
Website »

More information

Winter days find many animals curled up in their dens. They sleep warmly, awakening in spring ready to enjoy the renewed Earth. Discover how animals deal with cold weather and which ones hibernate...

Cost: For all ages; FREE. Registration is required for all family members,& childre

Where:
Historic Yates Mill County Park
4620 Lake Wheeler Road
Raleigh, NC  27603
View map »


Telephone: 919-856-6675
Website »

More information

Triangle Restaurant Week (January 20-26, 2020) is a week-long celebration of culinary excellence designed to incorporate the premier Raleigh, Durham, Chapel Hill and surrounding area restaurants....

Cost: $15-$35

Where:
Participating Restaurants
, NC


Sponsor: Triangle Blvd
Telephone: 919-673-5784
Website »

More information

Join us in Arendelle for Frozen-inspired STEAM activities for the whole family! Included in the ticket cost is dinner and dessert for the whole family, make your own sock Olaf and Frozen bouncy...

Cost: $35 per family

Where:
Kidzu Children's Museum
201 S. Estes Dr.
Chapel Hill, NC  27514
View map »


Sponsor: Kidzu Children's Museum
Telephone: 919-933-1455
Website »

More information

AML Wrestling presents our 5th Anniversary Celebration! WHEN: Saturday, January 25th, 2020WHERE: Winston-Salem Fairgrounds in theHome & Garden Building 408 27th Street NW/Gate #9 Winston-Salem, NC...

Cost: $5

Where:
Winston-Salem Fairgrounds
408 27th Street NW/Gate #9
Winston-Salem, NC  27105
View map »


Sponsor: AML Wrestling
Telephone: 336-831-0646
Contact Name: Tracy Myers
Website »

More information

Hounded by Death, the character of Everybody desperately seeks out everyone and everything they know in hope of finding something meaningful to take to the grave. These 90 minutes of theatrical...

Cost: Ticket prices start at $15

Where:
PlayMakers' Repertory Company
120 Country Club Rd
Chapel Hill, NC  27599
View map »


Telephone: 919-962-7529

More information

David Burney, lead singer for the acclaimed Johnny Cash tribute band Johnny Folsom 4, brings his one-man show to The ArtsCenter for three shows, January 24-26, 2020.  In “Hello, I’m...

Cost: $15 to $20

Where:
The ArtsCenter
300-G East Main St.
300-G East Main Street.
Carrboro, NC  27510
View map »


Sponsor: The ArtsCenter
Telephone: 919-929-2787
Contact Name: Patrick Phelps-Mckeown
Website »

More information

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Education Guide

The 2019-20 Education Guide offers 718 education resources in the Triangle, including area preschools, private schools, public school systems, charter schools, boarding schools and academic resources.

The Triangle Go-To Guide

Our Triangle Go-To Guide connects you to family fun resources across the Triangle. In our 2019-20 issue, explore 1,028 resources for family fun.